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We have included resources in articles throughout the guide on specific topics. Below are additional resources not listed elsewhere that may assist you with your cancer journey.
Acinic Cell Carcinoma
Bladder Cancer
Blood
Bone Cancer
Brain Cancer
Breast Cancer
Families Who Support Breast Cancer Survivors
Families Who Support Breast Cancer Survivors, Inc. is a Non-Profit Corporation designed to assist Breast Cancer patients and their families with support, education and resources with the ultimate goal that they become Survivors for years and year to come. We are partners with all existing cancer organizations and participate and even sponsor events specifically designed to promote Breast Cancer and all Cancer awareness and raise funding to provide Mammograms and related medical assistance.
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Mothers Supporting Daughters with Breast Cancer (MSDBC)
25235 Fox Chase Drive, Chestertown, MD 21620
(410) 778-1982
Special Services:
A national non-profit organization providing support to mothers whose daughters have breast cancer. Free educational materials tailored to mothers and daughters about breast cancer treatment and constructive ways for mothers to provide support are included. Mothers are “matched” with mother volunteers across the country based on the daughter’s clinical profile, age at diagnosis and anticipated treatment.
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Pink-Link
Mission Statement:
Pink-Link is a nonprofit organization which connects breast cancer survivors online. On our website, www.pink-link.org, women can connect with other women with similar breast cancer issues using the search capabilities of our innovative online database. It’s like a Match.com for breast cancer survivors! We currently have over 4,000 members in all 50 states and internationally.
In addition to our survivor database, our members can create a personal journal, to keep family and friends updated about their treatment and get help from our on-staff professionals regarding nutrition, exercise, skin care, alternative medicine and lymphedema (a condition associated with breast cancer). Our members can connect with each other through our member forum as well. Privacy and confidentiality are our number one concern.
All services provided on our website are completely free. We rely on the generosity of individual donors and corporations to fund our organization.
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Cancer Education
International Union Against Cancer
By signing the World Cancer Declaration you join a worldwide community that is calling on key decision makers to reduce the global cancer burden. Our goal is to gather 1,000,000 supporters for a Cancer Free World - we will present this support to the world’s leaders at the first UN Summit for Non Communicable Diseases (NCD's) in September 2011.
There has only been one UN General Assembly Special Session, focused on health since 1945; the announcement of next year's Special Summit on NCDs is an unprecedented step in the battle against cancer and represents an opportunity for our generation to eliminate cancer as a life-threatening disease for future generations.
Together we are stronger! Help us reduce the global cancer burden, join our campaign today!
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Carcinoid
Caregivers & Support
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The Hope Light Foundation
908 Hazelvalley Drive, Hazelwood, MO 63042
(314) 838-4959
Mission/Strategy:
The Hope Light Foundation (HLF) is a nonprofit, public charity organization dedicated to communicating all-cancers awareness information to enable people to detect, diagnose and treat cancer early while in the organ of origin to enhance survivorship and save lives. The HLF uses evidence-based criteria to target high risk for cancer death communities and establish needs-based interventions.
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Cervical Cancer
Childhood Cancer
Colorectal Cancer
Complementary & Alternative Medicine
Directories to Resources
Drug Research Updates
Early Detection
Elderly
Esophageal Cancer
Ethnic & Religious
Gastrointestinal Cancer
Gynecologic Cancer
Head & Neck Cancer
Hodgkins Disease
Hospice & Home Care
Kidney Cancer
Laryngeal
Leukemia & Lymphoma
Cutaneous Lymphoma Foundation
PO Box 374, Birmingham, MI 48012-0374
(248) 644-9014
The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care and facilitating research.
We invite you to support our important work by designating donations you make to the Combined Federal Campaign (CFC #12294) and the United Way (UW #042972) to the Cutaneous Lymphoma Foundation. Thank you in advance for your support! For more information on the many ways you can become involved and support our life-changing mission, please visit http://www.clfoundation.org/.
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The Leukemia & Lymphoma Society
1311 Mamaroneck Avenue, Suite 310, White Plains, New York 10605
Information Resource Center (IRC): (800) 955-4572
The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding leukemia, lymphoma and myeloma research and providing patient education and financial and support services. LLS has free patient education and support booklets in English and Spanish. Contact our master's level Information Specialists for up-to-date information and support, Monday through Friday, 9 a.m. to 6 p.m. ET at (800) 955-4572 or email infocenter@LLS.org. Information Specialists help patients work with their doctors to find out about specific clinical trials. You can also use TrialCheck®, an online clinical trial search service supported by LLS that offers patients and caregivers immediate access to listings of blood cancer clinical trials.
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The National CMS Society (formerly Carolyn's Hope)
130 Inverness Plaza #307, Birmingham, Alabama 35242
(877) 431-2573
The National CML Society was created for patients and their families in order to provide a centralized hub of information for those facing Chronic Myelogenous Leukemia.
Our mission is to provide educational and financial resources, access to CML Specialists, and a living, breathing network of others that can share their personal CML experiences and successes.
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Patients Against Lymphoma
3774 Buckwampum Road, Reigelsville, PA 18077
(610) 346-8419
We provide online support forums (including on Facebook), and a comprehensive resource on lymphoma: www.Lymphomation.org. Our content is determined by patient questions. Our research objective is make consideration of clinical trials routine, in order to accelerate progress against lymphomas.
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Liver Cancer
The Cholangiocarcinoma Foundation
5526 West 13400 South, #510, Salt Lake City, UT 84096
(801) 999-0455
The Cholangiocarcinoma Foundation is a nonprofit leading the way in collaboration, understanding, research and education within the bile duct cancer community. We exist to find a cure and improve the quality of life for those affected cholangiocarcinoma. Visit our web site, www.cholangiocarcinoma.org, to find help for newly diagnosed patients, major cancer centers treating cholangiocarcinoma, patient support including forums connecting patients and caregivers to one another and more.
Every hour that has gone into The Cholangiocarcinoma Foundation has been volunteered. We are working to support research to find a cure. We invite you to support our important work through donations to: The Cholangiocarcinoma Foundation. Thank you in advance for your support!
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Lung Cancer
Melanoma
Mesothelioma
Multiple Myeloma
Myelodysplastic & Aplastic
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Myelodysplastic Syndromes Foundation
36 Front Street, P.O. Box 353, Crosswicks, NJ 08515
(800) MDS-0839
Special Services:
The MDS Foundation is an international organization devoted to patient support, research, treatment, and education in the myelodysplastic syndromes (MDS). The Foundation is based on the premise that international cooperation will accelerate the process leading to the control and cure of MDS. The Foundation, through our current network of 152 Centers of Excellence worldwide, provides referrals for patients, disseminates information on research and treatments, provides educational programs for physicians and patients, and supplies funding/oversight for international studies in MDS.
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Oral Cancer
Ovarian Cancer
Gilda Radner Familial Ovarian Cancer Registry
Roswell Park Cancer Institute, Elm and Carlton Streets, Buffalo, NY 14263
(800) 682-7426
Mission Statement:
The Gilda Radner Familial Ovarian Cancer Registry research goals are to identify new genes associated with familial ovarian cancer, to improve genetic and psychosocial counseling about lifestyle choices that reduce ovarian cancer risk in women who may be more susceptible to the disease. The registry is acquiring information that will lead to better methods for detecting ovarian cancer and for reliable testing for ovarian cancer predisposition.
Description:
We are an international registry of families with two or more relatives with ovarian cancer. We are collecting family histories, medical records and biological samples from these families. The registry offers a newsletter, ovarian cancer informational brochures and an ovarian cancer informational hotline for women with high risk of ovarian cancer – 1-800-OVARIAN.
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Pain Management
Pancreatic Cancer
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The Lustgarten Foundation
Toll free: (866) 789-1000
The nation’s largest private supporter of pancreatic cancer research, The Lustgarten Foundation is dedicated to advancing the science and providing patients, caregivers and health care professionals with free, accurate information. Thanks to Cablevision Systems Corporation’s commitment to underwrite all of The Foundation’s administrative expenses, 100% of every dollar donated goes directly to pancreatic cancer research.
Patient Tools
Recognizing the unique challenges faced by individuals with pancreatic cancer, The Lustgarten Foundation provides comprehensive education materials free by request. Bulk orders are also available at no cost to health care professionals. Materials include:
- Understanding Pancreatic Cancer: A Guide for Patients and Caregivers (Link: www.lustgarten.org/patienthandbook
- Clinical Trial Matching Service (Link: www.lustgarten.org/clinicaltrials) in partnership with EmergingMed
- Interview With An Expert (Link: www.lustgarten.org/expertinterviews) patient information series
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Patient Advocacy
Prostate Cancer
Radiology
Rare Cancers
Research
Sarcoma
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The Sarcoma Alliance
775 East Blithedale, #334, Mill Valley, CA 94941
(451) 381-7236
The Sarcoma Alliance provides guidance, education and support to everyone affected by all types of sarcoma. We have a website providing diagnosis and treatment information including links to other sarcoma organizations. We have a bulletin board, a chat room, a peer to peer program and provide grants for getting second opinions.
Key Web Address:
Following are links to our key programs. Our Discussion Board (http://www.sarcomaalliance.org/bulletinboard.html) has a number of forums for people with different interests or questions. We have a moderated Chat (http://www.sarcomaalliance.org/chat.html) on Wednesday and Sunday. Finally, we have a Peer to Peer Program (http://www.sarcomaalliance.org/P2P.html) and provide financial grants for second opinions (http://www.sarcomaalliance.org/assistance.html).
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Skin Cancer
Testicular Cancer
Thyroid Cancer
ThyCa: Thyroid Cancer Survivors' Association, Inc.
Description:
ThyCa: Thyroid Cancer Survivors' Association, Inc., a national nonprofit 501 (c) (3) organization advised by thyroid cancer specialists, educates and supports patients and families through its web site, support groups, person-to-person support, free patient information packets, free newsletters, free Low-Iodine Cookbook, workshops, and conferences. ThyCa sponsors Thyroid Cancer Awareness Month, plus thyroid cancer research fundraising and research grants. E- mail thyca@thyca.org, phone (877) 588-7904, fax (630) 604-6078, write ThyCa, PO Box 1545, New York, NY 10159-1545, Web site: www.thyca.org
Free Online Tools from ThyCa:
Free Low-Iodine Cookbook
English: http://www.thyca.org/Cookbook.pdf
Spanish: http://www.thyca.org/CookbookEsp.pdf
Free Newsletter: http://www.thyca.org/guestbook.htm
Information for People Newly Diagnosed with Thyroid Cancer: http://www.thyca.org/newly_diagnosed.htm
Free Patient Information Packet: http://www.thyca.org/packet.htm
Awareness Materials: http://www.thyca.org/awareness.htm
Free Publications: http://www.thyca.org/downloads.htm
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Women’s Health
Young Adults
More Information
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